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Feeling Ostomistic
Monday, October 15 2018

I posted on social media the other night (well, last Thursday) a teasing photo of a delcicious hearty stew I had brewing in the Slow Cooker, it sparked so many asking for the recipe, so here is the stew recipe and story behind it.

Please note: I have not been paid by any of the companies I mention when it comes to ingredients I use, you can always opt for your own preferred company of choice, but this is my stew and how I have made it for over a decade.

Story behind the Stew:

I first learned about this stew when I was staying over at a friends house in year 12 and we went to spend the day at her Grandmother's house and she said "girls since you're leaving home soon I better share an easy stew recipe". So we cooked it and she talked us through it and she gave me a copy, I started experimenting making the stew and adding in different ingredients and was determined to make it my own.

It is one of those stews that are perfect for wintery cold nights or if it is raining outside and will be rainy days ahead it is nice to just pop the stew on to cook in the slow cooker and wait for it to cook, meanwhile enjoying the smells as they fill your house for the next 8 hours.

I also find that we can get a few days worth of meals out of this, we put as much as we can into chinese containers and pop them in the fridge and freezer, but one chinese container is one bowl full for one person.

But don't ask me the calorie intake, I have no idea but it is just delicious, and Russ loves it too! You'll want seconds it is so good!

You will need:
 Ingredients, see below
A slow cooker
Knife
Measuring cup
Big ladle or soup stirring spoon

Ingredients: (I get all my ingredients from my local Woolworths)

1 x large bbq chicken [ or you can cook your own chicken, ] for time management and ease I use a BBQ chicken (it is the most costly component), sometimes you can find cold chickens which is just as good to use and cheaper too
2 x cans of Campbells Canned Soup Cream Of Chicken & Corn 420g
OR 1 x can of the previous with 1 x can of Campbell's Canned Soup Cream Of Chicken 420g
2 x cans of hearty or chunky vegetable soup (select brand is fine, sometimes i get one cheaper brand and one of the campbells range)
1 x Continental Cup A Soup Creamy Garden Vegetable 2 Pack 2pk 70g (use 1 pack and keep one aside for next time)
1 x Continental Cup A Soup Creamy Chicken & Corn With Croutons 2 pack (use 1 pack and keep one aside for next time)
1/3 a bag of San Remo Shells Small Pasta No 28 500g
1 x cup of water, cold is fine
1/4 a bag of Woolworths Carrots Peas & Corn 1kg
2 or 3 carrots (depending on size) chopped in chunky pieces roughly 1cm in width (skin left on)
4 or 5 white spud potatoes (with skin left on) chopped in halves or quarters depending on size
1 or 2 sweet potato (depending on size) chopped in maybe 2cm pieces then chopped again into halves or quarters depending on size of piece
You can add in broccoli or cauliflower, sometimes I will add in fresh pieces or I will use a winter vegetable pack of frozen chunky vegetables

*

I think that is all the ingredients, now for the making of it

Steps:

Step 1. Locate your slow cooker and plug in to power, add 1 cup of water and turn to high

Step 2. Wash your fresh vegetables like sweet potato, carrot, potatoes just wash but keep skin on (when it is ready the skin just easily fall off), if you're adding in fresh brocolli or brocollini or cauliflower wash these too.

Step 3. Add in the cans of Campbell's condensed cream of chicken and corn or cream of chick soup cans into the slow cooker.

Step 4. Add in the canned vegetables.

Step 5. Add in the Continental cup a soup creamy garden vegetable and creamy chicken and corn with croutons sachets.

Step 6. Mix all the soup together

Step 7. Next add in the BBQ chicken by tearing off small bite size pieces but not adding in the skin, bones or stuffing

Step 8. Mix the chicken and soup mixes together

Step 9. Add in the shell pasta and mix it all together, add more if you think it needs more, but not too much more.

Step 10. Add in the pieces of cut chunky fresh carrots, sweet potato and potato. Stir it all together.

Step 11. Add in the frozen vegetables and stir it all together.

Step 12. Leave on high for 2 hours, check roughly hourly and stir, it can be messy as it will rise and thicken as it cooks.

Step 13. After 2 hours turn to low for 6-8 hours and check hourly and stir

Step 14. Leave it on low for another couple of hours if you think it needs longer.

IF DISCARDING STEP 14, turn it off and serve.

Step 15. ENJOY your delicious thick stew

* We love to buy the packs of dinner rolls from the woolworths bakery and pop in the oven so they are hot and fresh for when we serve up our dinner, we cut them along the tops and we stuff spoonfulls of stew in there and then eat it like that. We also use bread not toasted but buttered to scoop up the soup and it just is delicious.

Step 16. Fill up containers, we use takeaway chinese containers and pack these to the brim and pop 3/4 in the fridge and 1/4 in the freezer. We find with the 2 of us we can eat this for lunch and dinner for a few days using the fridge containers, often Russ goes back for a second bowl.

My observations:

I have made this when I have had my kid siblings come and stay over the years or my MIL and they have loved the stew. It is so easy to make and all the effort is in the preparation and the slow cooker does the hard part. I would cook this if it were cold and miserable weather, or if it is raining, nothing says snug as a bug as a hearty winter stew whilist nestled under blankets enjoying a movie.

We made this Thursday night, and I say we as I sat and supervised Russ and told him what to do as I wasn't up for standing in the kitchen for even half an hour or less (pain). But Russ loves when "we" make stuff together, he loves learning how to cook some of my meals that he loves.

We started cooking this at 7pm Thursday night and was cooking when we went to bed, and the aroma wafting through the house had my tummy rumbling all night. We would check it every hour and then we turned it off and put it in chinese containers and went back to bed. So it was exciting to wake Friday and have stew for lunch, and dinner and we still have a couple of bowls left.

But I have to be careful with my stoma, luckily all the veggies and chicken break down so soft they just fall apart and then i try to take the skin off to avoid a blockage, but as I have had so much and it has caused my output to be rather thick and caused a blockage, so just keep that in mind if you're an ostomate prone to blockages that it does make things thick.... but it is so delicious!

Our Slow Cooker:

This is an adorable story, we got our slow cooker the first Christmas we were together (2009). We spent Xmas Eve with Russ' family who were up from Melbourne as we planned on spending the next day with my dad and family. So we unwrapped our gifts and our joint gift from Russ' family was a George Foreman slow cooker. I was so excited as I had been saying to Russ I wished we had one as I was missing being able to cook my stew. 

So the next day we went to Xmas at my dad's and he handed us a joint Xmas present which was a slow cooker! we laughed as what are the odds of getting 2 slow cookers! I was really appreciative and thanked my dad but Russ' mum made a comment how she beat them to it and we had one already, so dad took it back to the store as it was unopened ( we already opened the one the night before as I was keen to make pinterest desserts) and he bought us something else. 

I remember one Xmas dad wanted an electric sander so he bought one for mum so she could use it, and that same Xmas mum bought dad an electric sander so she could use it. It still makes me smile even though I was 10, it made me laugh that Xmas with the slow cooker remembering the electric sander gifts.

So we have been enjoying our slow cooker for quite some years now, I used to use it more when I could easily jump in the car and go get groceries and was more independant, but I am wanting to make slow cooked lamb shanks for Russ next winter.... but I have been trying to convince my nan to get a slow cooker as she would love it, pop the meal on in the morning and smell it cook all day. 

Tell me, what is the favourite slow cooker recipe of yours? Mine is definitely my hearty stew.

If you do manage to make this please let me know how you went!

 

Posted by: Talya AT 06:44 am   |  Permalink   |  0 Comments  |  Email
Friday, January 12 2018

NB: This post contains talk about poop

You always remember your first time doing a milestone. Well today I am celebrating the first time I showered without my bag on and boy I felt like a rockstar afterwards as though doing something mundane but great.... If you know what I mean.

There have been times where I have had a really bad bag leak, I'm not talking about a little seepage from under the wafer, I am talking a leak of cataclysmic proportions like a volcanic erruption or a poosplosion (the latter is real, trust me). My clothes, my linen and my mattress protector needed to be washed and soaked with napisan.

Then there was me, not only were the clothes I was wearing drenched, but so was I.

You know when you go to the beach once but for the next month you find sand everywhere and it gets into every nook and cranny? Well, that is how it is for me when I have a bag leak of epic proportions, except switch out sand for poo and you've got yourself a winner.

So in times of a cataclysmic bag leak it is best to just get in the shower and be hosed off and clean up the mess later.

I have always been hesitant though at jumping into the shower without a bag on, normally I would clean my self up the best that I could while sitting on the toilet and once a new bag is on I would then jump into the shower. Which often meant changing my bag afterwards.

I know what you're thinking, but WHHHHHHYYYYYY?

Well, it was simple....

I was scared.

I have never, in 5 years, showered without a bag on. 

I know many do and many have many times, but I was always hesitant.

One of my fears, with my first stoma (May 2013-feb 2016), was because essentially your bowel is stitched to the outside of your abdomen I was worried about the run off from my shower gel or shampoo/conditioner would affect my stoma or cause irritations that might leave me presenting to the emergency department explaining my issue and people think I am silly for not knowing better. It really used to play on my mind.

So I never did try with my old stoma.

Then this new stoma (feb 2016 to now) is a total pain in the ass, it is retracted and sits under my skin, essentially I poop out of a belly button looking hole. So because of this I was always worried that the run off or chemicals would get inside into my small bowel and cause issues, because, well, soap and shampoo/conditioner shouldn't naturally be in your small bowel... so I worried it was just a recipe for disaster.

But with both stomas I was also worried about the mess side of things, like what if it were active during my shower, what if it were active while I was drying myself and would have to shower again and the circle would go on, and on, and on. I also can't bend over or get down to clean, so I was worried about leaving another chore for Russ to do, so I feel enough a burden when my bag leaks this badly and he has to help clean me up.

So back to my story.

I was in bed asleep all day and woke around 6pm to find my bag leaked, I called for Russ to help me as it was too much for me to manage to clean on my own.

Each time it is this bad he always says "just jump in the shower and hose it off", but every time I say "uhh, no it's okay I will figure it out".

Except yesterday I really had no energy and said "what the heck".

I took my bag off and disposed of it, that way I could clean my stomach better and easier.

I had my first shower without my bag on, it was nice to have water running directly on my belly as opposed to wet towelling and washers. It was nice. I have a handheld shower head which has different notches you can turn it to for different settings, so I put on the more gentle of the settings and didn't hurt.

I was worried about the repurcussions of an active stoma.... but to my surprise there wasn't any disasters. My stoma had probably expelled everything it had stored in there (daily I have bowel blockages due to tumour issues) so sometimes it works all of a sudden and leads to poosplosions like this.


Me post shower, feeling like a freaking rockstar!

Now I know next time when I should just jump in the shower and hose off that it will be okay, that I won't die because my soap chemicals burned an ulcer through my small bowel or that showering with my bag off won't damage my skin if anything it helped it.

Thankfully it isn't everyday that I wake up with a leak like this, some days it is more managable, but it is uncommon to have a day where I don't wake with a leak. There have been a couple of times when a leak like this happened during the day when I was out (once at a wedding and once at a restaurant), so in those moments I can't just hose myself off. 

Have you tried showering without your bag? Were there worries you had too?

I know my worries might have seemed over the top, but I live with bad anxiety and that anxiety rules a large part of my life and very quickly my mind can esculate a situation.

I am used to bag leaks now, but it took a while to not be flustered. At first I would cry every time my stoma leaked and I would be so flustured and overwhelmed, so much that my husband would step in and help me. He always was the calm one. I used to play songs or music when I did a bag change to help distract me. When I got my new stoma and it leaked almost hourly I basically had an ipad set up and would watch something funny to distract me, the steps involved in doing a bag change took almost an hour each time and it just helped the time to pass by being distracted.

Now when it leaks, I am just so focussed on getting a bag back on as quick as I can because sometimes it can take a long time to stop being active long enough to whack the bag on.

If you have a frequent leaking stoma, welcome to the club.

But be sure to see your stoma nurse about why you have a leak and what you can do to prevent it, I know not all leaks can be prevented but sometimes there could be a new or better product for you to try.

With my first stoma I was have regular leaks every few days, I realised that my output was getting under my base plate, so my STN gave me rings/seals to try and it really helped improve the longevity of my bags and I was able to go 7-10 days between changes and my skin was still good... I do miss my old stoma, and it is important to note what worked for me in that situation might not work the same for you.

Of course there isn't anything to be done about this current stoma, and it could be the same for you, but sometimes your nurse or surgeon can help.

Posted by: Talya AT 03:40 am   |  Permalink   |  0 Comments  |  Email
Sunday, September 04 2016

I often wonder if my dad's bowel cancer had of been detected early on, would he still be here today? I believe that he could have been, especially if it hadn't metastised yet.

I also wonder, would he have needed a stoma and if he would have been okay with needing one if it meant he would still be alive.

Then I imagine my dad and I twinning at being stoma bag buddies, and sharing a humour about life with a stoma that only we would understand and appreciate.

My dad was one tough bloke, he was WAY tougher and stronger than I could ever be. He hardly complained about being in pain, and although you could see in his eyes he was exhausted, he would still make sure that he was there for us kids.

But, I know how hard living with a stoma can be, especially in those first few months.

I know if my dad were given the choice of life with a stoma or death he would have opted for living, he would have done anything for his kids. He would have made jokes about having a leak in public, and gone "well, fuck. Shit happens aye". 

He probably would have even said something like "don't scare me like that... I shit easily".

But something totally corny and dad jokey would have been "talk about de ja poo... I've heard this crap before"... or "Did you know that diarrhea is genetic... because it is running in my jeans".

Dad was a true comedian and could turn any situation into one that could make you laugh... I think he would have continued that humour and his positive outlook through having a stoma too.

I like to think that is where my strength, ostomism (optimism with a stoma) and humour come from.... and in a way I feel that he helps me to get through each day by asking myself "what would dad have done/said".

Even after his death my dad continues to inspire, motivate and give me the strength I need to get through my day.

Happy Father's Day dad.

Tell me, is there something that you inherited or share an interest with your dad?

 

 

 I ask (if you feel inclined to) that if my blog or my writing has helped you or made  a difference in your life, please consider treating me to lunch or a mango  smoothie by clicking through to my paypal.me account

 I am mostly housebound  so being able to go out for a nice treat would really help  make my day that little  bit brighter. Would also help me to feel appreciated too.

 

 

Posted by: Talya AT 11:01 pm   |  Permalink   |  1 Comment  |  Email
Monday, August 22 2016

NB: This post is purely satirical... proceed to read with sarcasm

Recently, I was called Gross.... I was asked "how can you live like that?"

Well, I can and I do, and it is pretty simple. I wake up, I live my life and do stuff through the day and then I sleep... and repeat! See, easy!

You see, my daily routine is somewhat similar to a 'normal bodied routine'... I say somewhat as it is slightly different as it involves me essentially shitting myself 24/7 (oh the horror) but I can point out many similarities to our daily routines...

A typical day of mine goes like this:

7-8am: I wake up in the morning, and one of the first things I do is go to the toilet. Nothing like that first pee in the morning, except I also have to empty my bag. Which is usually mostly air, as most people fart all night. I fart too, just you don't smell or hear mine as it is trapped in a stoma bag.

8.15: I am sure this is where you take your coffee, the one thing that you probably need to get you through the day? I consume something too, my medication (thyroxine, endone and folic acid), I need these to survive and can't live without.

8.20-8.30: Just as my husband is getting ready to leave for work I call him in for a quickie.... he quickly jabs me and he puts on his shoes and then is off on his merry way. Then he can rest easy all day knowing that he helped to keep me alive that day with my blood thinning injection.

9-11.59am: The elusive siesta... some might call it sleeping in, some might call it taking a nap. You probably prefer an afternoon nap, but I have mine in the morning so by lunch time I am wide awake.

12-1pm: I have lunch.. this may vary day to day from leftovers the night before to eating dry crackers. If I am feeling adventurous I might even go out for lunch.

1-5pm: I would call this my 'work time'. I only have a 4 hour work day and mostly my work involves writing a blog post, designing fun little pictures.. who am I kidding, I am on facebook and shopping.

5.30pm: My husband comes home and cooks dinner. Dinner is usually something fancy like bangers and mash. In our household we aren't atypical to the stereotypes of the roles of a 1950's housewife; my husband does the cooking, the cleaning and the bringing home of the bacon.

6pm: We have dinner, talk about our days (he acts like I actually did more than just sit on fb all day) and then we just watch netflix and chill

7pm: We have our showers, everyone needs to shower. I just happen to need to do a bag change afterwards.. No biggie. We all need to change our underwear everyday (and my stoma bag is the underwear of my stoma)

7.30pm: Husband goes to the study and does computer related stuff (as he hasn't just spent all day around computers) and I go to my office (the dining table) and belt out songs. This goes on until bedtime.

8PM: Husband comes to give me another quick prick for the day, ensuring that he has kept me alive for the night.

10pm: We head to bed and read. Well, he tries to read; I just try to have a chin wag and nag at him about what he didn't do or needs to do the next day.

Annnnnnnd then I go to sleep.... and get ready to repeat it all the next day!

So that is my typical day, but also throw in having to do a bag change whenever I just decide to shit myself (you know because I have control over that and all).

So I am sure there are many similarities to our day... we all eat, sleep and shit. I just do it a little differently to you, but doesn't make me gross. Who wants to be normal when you can just be unique?

Oh, and having a stoma isn't the worst thing in the world.... some people have a stoma as it was either that or death.

It can be rather convenient too!

Imagine you're standing in the long queue at Big W to do the no deposit toy laby, and all of a sudden you need to do a poo! Oh what are your options? Either leave your trolley unattended in queue while you run off and pray that no one steals your loot or your spot in the line, or you just stay and wait and have an accident? Well, for me I can just do a number 2 at any time of the day and it conveniently collects into a pouch (that doesn't smell I might add) and then as it is full I empty into the toilet. No more missing out on sales for me!

But tell me, aside from now pooing differently has your life changed too much with a stoma?

 

 

 I ask (if you feel inclined to) that if my blog or my writing has helped you or made  a difference in your life, please consider treating me to lunch or a mango  smoothie by clicking through to my paypal.me account

 I am mostly housebound  so being able to go out for a nice treat would really help  make my day that little  bit brighter. Would also help me to feel appreciated too.

 

Posted by: Talya AT 07:05 am   |  Permalink   |  0 Comments  |  Email
Thursday, August 04 2016

Back in November 2011, I had not long purchased the latest iPhone 4S and the exciting thing was that there was now this app on your phone that you could enter in your starting destination and your concluding destination and it would find the route for you and verbally navigate you to where you needed to go.

It meant I no longer needed my in car navman, and there was now more room in the cigarette lighter part thingy (insert proper name here) and I could charge my phone while travelling.

So we were headed off to Bathurst (NSW west of Sydney) for one of my best friend's wedding, and we had never been there before so we needed a little bit of help from the nav on my phone.

I entered in our starting point and the hotel details (we were staying at the hotel RIGHT ON THE BATHURST 1000 TRACK.. you know Mount Panorama.. gees listen to my inner bogan coming out) and it brought up the route we were to take.

As we had never travelled there before I didn't question the route offered and just started driving, stopping at Karuah to refill the tank.

We got just past the Newcastle turnoff, and were at this huge roundabout that says "Sydney/Freeway Left Lane" and "Maitland New England Highway Right lane".

My nav told me to take the Maitland New England route... again not questioning it as who was I to tell it how to do it's job.

So we got to Singleton, then we got to Muswellbrook and then we got to a T intersection. The highway continued to the right and to the left was a dirt gravel road.

We were instructed to take this road (the left).

After following it for what felt like hours, we came across a road that had cattle grids all over the road and there was cattle just roaming about. I can't recall where we were but were in the middle of no where.

We kept following all these dirt roads and the occasional tar road when we eventually got to the back of the Blue Mountains... by this point we had been driving for around 8 hours already and I was getting annoyed. There was no service and hadn't had service for hours so I couldn't call my dad and ask for his directions (he was a truck driver and knew his way around).

We eventually found a rest stop (that you had to hike up a mountain to get to) and so we hiked just to try and get service.

I had all these missed calls from my dad wondering how I was and where we were and how far away from Bathurst we were as we should almost be there.

We told him where we were and he laughed and said "how the f$%& did you manage that?" When we told him it was the navman on our phones he said "well I told you technology is f'ing hopeless... you should have used a map and gone via sydney".

So we continued on our travels with the phone directing us, as we had no idea where we were, and we were almost at Dubbo (Wellington) when it took us down through Orange, out through some bush and eventually to Bathurst.

We arrived at the hotel at almost 8PM and 14 hours of driving around the country side.

We were annoyed, we were tired and we had the shits.

On the way home we weren't trusting the navman again and just followed the signs to Sydney then I knew where to go from there.

But what an experience that was! And everytime someone mentions Bathurst or driving out West we say to each other "remember that time our nav f'ed up and sent us through the countryside" and we just laugh.

But we did see some beautiful sites, and haven't ventured back to Bathurst since.

But I am sure I am not the only one who has found themselves on an adventure because of their Nav? Share your story below

P.S if you were wondering, YES I did do laps on the Mount Panorama track.. surprisingly it had only a 60km/h speed limit and even had speed cameras!

Posted by: Talya AT 12:13 am   |  Permalink   |  0 Comments  |  Email
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~  Living with Familial Adenomatous Polyposis - Effects of FAP  ~

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Talya Goding - Feeling Ostomistic   talya@feelingostomistic.com.au  |  0447 426 860

Thank you for stopping by Feeling Ostomistic. It has taken a lot of courage to share my story and I ask that you show me and my site/blog respect and courtesy. Views expressed in this blog are my own and I am not a nurse or a doctor. If you need medical advice please seek your medical practitioner.

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