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Feeling Ostomistic
Sunday, April 10 2016

We know that chemo can be toxic to ourselves and we can get sick, but did you know that it can make those around us sick too if they are exposed.

Before I started chemo, I was invited to attend a chemo education session where I learnt things about treatment, nutrition and what it means to be cytotoxic.

When you have chemo you are considered 'cytotoxic' for the next 7-10 days. This means that your bodily fluids such as urine, tears, sweat, saliva, semen, poo and blood contains chemicals that can be toxic to others if they are exposed to it. They can be near you and not get sick, just as long as they don't come into contact with your bodily fluids.

So when you have chemo it is important that you be mindful of what you're doing to help protect those around you.

Here are 10 steps I take to ensuring the safety of others around me when I am cytotoxic

#1. Double flushing the toilet with the lid down
This helps to keep the toxic waste inside the toilet and avoid splashing. Double flushing also ensures that the toxic waste is removed from the toilet and is safe for the next person to use. Make sure you also wipe the toilet seat properly.

#2. Try and use one toilet for my use only
I know this one can be hard especially if you only have one toilet being used by all the members of your household, but I am lucky in my house that we have two toilets and I try and keep one toilet for my use only. This is just to minimise the risk of me being cytotoxic with my husband or guests visiting our house.

#3. Don't share drinks/cups
As saliva is one of the ways in which I am cytotoxic it is important for your own safety that you don't drink out of a bottle I have drank out of, or a cup. If you (like me) prefer to drink out of the bottle of milk or softdrink rather than in a glass simply mark that bottle with your name or just make sure others know not to drink that drink.

#4. Don't share food/utensils
This very much goes with #3, don't eat the food off my plate or use my utensils after I have used them. I have to keep reminding my husband to not eat my leftovers. I am getting more into the habit of having smaller meals and going back for more if I am hungry as opposed to food going to waste... but sometimes my eyes are just too big for my tummy!

#5. Use condoms if having sex even if it is just oral
Not only do you not want to get pregnant while undergoing chemo (I imagine it wouldn't be good for the baby), but it also isn't safe for your partner if you have unprotected sex.

#6. Double line your garbage bags when disposing your stoma bags
This is something that I was told to do by my stoma nurses which helps ensure the safety of those working in the garbage disposal industry in the event that the original bag you've disposed of your stoma bag in has broken down or torn open, that you aren't exposing workers or the environment to your toxic waste. To be safe I put my soiled stoma bag in a garbage bag and seal it then place it inside another garbage bag and seal that one.

#7. Make sure you have disposable gloves handy
If you are likely to have someone at home who would jump in willy nilly and help you clean up if you vomitted, had a bag leak or made a mess, it is important that you have gloves at the ready for them to wear to protect themselves. My husband bless his soul really is my night in shining armour, he sees that I am in trouble and his first instinct is to jump in and help me. But, I have to keep stopping him and reminding him to get gloves if he wants to help as I don't want to run the risk of making him sick. Also put the used gloves in a plastic bag and seal it before placing in the garbage bin.

#8. If you are holding a newborn
My brother (and his partner) recently had a beautiful little boy. Easter was approaching and I had started back on chemo and I knew I would be sad if I could see him but not get cuddles. So I asked the chemo nurses if it was okay for me to hold him and they said that it was providing I wasn't sweaty, I don't kiss him and my bag isn't leaking. Thankfully, I got a couple of cuddles in on Good Friday and I made sure that there was always something between my skin and the baby to be safe. 

#9. Wash soiled items seperately
When you do have a leak it is important that the clothes and linens are washed seperately to your normal (non-chemo person's) laundry. I find one wash cycle to be enough to clean the clothes, it is just more to protect other's clothes from being exposed to cytotoxic waste.

#10. Wash your hands and make sure others do too
Whenever you go to the toilet, do a bag change, deal with soiled linen or clothes or if you sneeze/cough always make sure you wash your hands. Not only is this good hygeine practice, but it helps eliminate the spread of germs and chemicals. Make sure others around you wash their hands too and if possible ask them to use hand sanitiser.

Posted by: Talya AT 09:50 pm   |  Permalink   |  0 Comments  |  Email
Tuesday, April 05 2016

Stomas come in all shapes and sizes, just like us! We all have different body shapes and types and have issues when it comes to fashion.... well I know that is how it is for me.

I am plus-sized, and have been the entire time I have been an ostomate. So while the tips I share below might be helpful to some with a stoma, it might be irrelevant to others, which is just because our body shapes are different.

Here are my: 5 quick fashion tips when you have a stoma

#1. Avoid pants with button up or zip up flies
One thing I learnt early on in the game is that pants with zip or button up flies were rather uncomfortable. It could be due to where my stoma sits which was exactly where I would be trying to do my pants up, and if I were successful enough to get them done up it was rather uncomfortable as my stoma started to fill up and felt like it was going to burst.

#2. High wasted and elasticised pants will become your new wardrobe staple
When I realised I couldn't wear my beloved jeans anymore, I had to get rid of them. I have these elasticised wasted pair of jeggings (looks like jeans but are leggings) and I bought them not long after my stoma surgery. Imagine my excitement when I could wear comfortable, elasticised pants that look like jeans without the uncomfortable zips. I loved these so much that I bought myself 3 pairs, and 3 years on they are still going strong and I wear them most days. Even maternity pants are great!

#3. Find dresses that you are comfortable in
I used to love wearing tight fitting dresses that showed off my curves and boobs, but I found when I had my stoma it sometimes became noticable if my stoma filled up, but it also was a little uncomfortable as it was filling and the dress was tight. I learnt to find dresses that still made me feel feminine but were rather loose fitting around my stoma. I also like tunic style dresses that I can wear black tights and boots with.

#4. Wear PJ's that are one size bigger
I have found that by wearing bigger sized PJ's that they are more comfortable of a night when you're trying to sleep. Not only are they loose but they aren't compressing on your stoma and it has the room to fill up. I know this if favourable for me, as I find my stoma becomes rather gassy over night and sometimes in the past when I have worn tight PJ's my stoma bag exploded as it just didn't have the room to move.

#5. One piece swimwear can be more comfortable than some shapewear
I know this might sound strange and I know the whole point of shapewear is for it to be rather tight and fitting, but sometimes I find it is too tight on my stoma and I feel like I can't eat or drink as to avoid it filling up and having to worry about trying to empty it every 10 minutes so it doesn't get too full. Then I thought I would try wearing a one piece swimsuit instead, and not only does it hold things in place but it feels a little more roomy and comfortable around my stoma. Obviously this wouldn't suit if wearing a strapless dress, but it might be an alternative solution to finding shapewear being too tight.

So these are just some of my quick tips that I incorporate into my wardrobe, and it might be something you've already worked out or might help you to try something new.

But I want to hear from you, what fashion adaptations have you had to go through after you had your stoma surgery? Feel free to comment below if you have some tips that help you.

 

Posted by: Talya AT 09:25 pm   |  Permalink   |  1 Comment  |  Email
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~  Living with Familial Adenomatous Polyposis - Effects of FAP  ~

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Talya Goding - Feeling Ostomistic   talya@feelingostomistic.com.au  |  0447 426 860

Thank you for stopping by Feeling Ostomistic. It has taken a lot of courage to share my story and I ask that you show me and my site/blog respect and courtesy. Views expressed in this blog are my own and I am not a nurse or a doctor. If you need medical advice please seek your medical practitioner.

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